Nursing Outlook
Volume 54, Issue 6 , Pages 345-352 , November 2006

A controlled national survey in France of health-related challenges for persons with Down syndrome

References 

  1. World Health Organization. International Classification of Functioning, Disability and Health (ICF). Geneva: WHO; 2001;
  2. Turner S, Sloper P, Knussen C, Cunningham C. Factors relating to self-sufficiency in children with Down’s syndrome. J Ment Defic Res. 1991;35:13–24
  3. Msall ME, Tremont MR. Measuring functional status in children with genetic impairments. Am J Med Genet. 1999;89:62–74
  4. Roberts K, Lawton D. Acknowledging the extra care parents give their disabled children. Child Care Health Dev. 2000;27:307–319
  5. Leonard S, Msall M, Bower C, Tremont M, Leonard H. Functional status of school-aged children with Down syndrome. J Paediatr Child Health. 2002;38:160–165
  6. McCarron M, Gill M, Lawlor B, Beagly C. A pilot study of the reliability and validity of the Caregiver Activity Survey—Intellectual Disability (CAS-ID). J Intellect Disabil Res. 2002;46:605–612
  7. Jansson L, Sonnander K, Wiesel FA. Clients with long-term mental disabilities in a Swedish county – conditions of life, needs of support and unmet needs of service provided by the public health and social service sectors. Eur Psychiatry. 2003;18:296–305
  8. Dykens EM, Hodapp RM, Evans DW. Profiles and development of adaptive behaviour in children with Down syndrome. Am J Ment Retard. 1994;98:580–587
  9. Pulsifer MB. The neuropsychology of mental retardation. J Int Neuropsychol Soc. 1996;2:159–176
  10. Hennequin M, Allison PJ, Veyrune JL. Prevalence of oral health problems in a group of individuals with Down syndrome in France. Dev Med Child Neurol. 2000;42:691–698
  11. Hennequin M, Faulks D, Veyrune JL, Bourdiol P. Significance of oral health in persons with Down syndrome: A literature review. Dev Med Child Neurol. 1999;41:275–283
  12. Faulks D, Veyrune JL, Hennequin M. Implications of facial dysmorphology on orofacial dyskinesia in adults with Down syndrome (A case series). J Oral Rehabil. 2002;29:209–218
  13. Prevatt B. Gynecological care for women with retardation. JOGN Nurs. 1998;27:251–256
  14. Terstegen C, Koot HM, de Boer JB, Tibboel D. Measuring pain in children with cognitive impairment: pain response to surgical procedures. Pain. 2003;103:187–198
  15. Locker D, Shapiro D, Liddell A. Who is dentally anxious? (Concordance between measures of anxiety). Community Dent Oral Epidemiol. 1996;24:346–350
  16. Hodgins MJ, Lander J. Children’s coping with venipuncture. J Pain Symptom Manage. 1997;13:274–285
  17. Barr O, Gilgunn J, Kane T, Moore G. Health screening for people with learning disabilities by a community learning disability nursing service in Northern Ireland. J Adv Nurs. 1999;29:1482–1491
  18. Flett P, Saunders B. Ophthalmic assessment of physically disabled children attending a rehabilitation centre. J Paediatr Child Health. 1993;29:132–135
  19. Chan L, Doctor JN, MacLehose RF, Lawson H, Rosenblatt RA, Baldwin LM, et al. Do Medicare patients with disabilities receive preventive services? (A population based study). Arch Phys Med Rehabil. 1999;80:642–646
  20. Allison PJ, Hennequin M, Faulks D. Dental care access among individuals with Down syndrome in France. Spec Care Dentist. 2000;20:28–34
  21. Chaushu S, Becker A. Behaviour management needs for the orthodontic treatment of children with disabilities. Eur J Orthod. 2000;22:143–149
  22. Wilson DN, Haire A. Health screening for people with mental handicap living in the community. BMJ. 1990;301:1379–1381
  23. Schopp LH, Sanford TC, Hagglund KJ, Gay JW, Coatney MA. Removing service barriers for women with physical disabilities: Promoting accessibility in the gynecological care setting. J Midwifery Womens Health. 2002;47:74–79
  24. Tuffrey-Wijne I. The palliative care needs of people with intellectual disabilities: A literature review. Palliative Medicine. 2003;17:55–62
  25. Allison P, Hennequin M. The Oral Assessment-Down Syndrome questionnaire (OADS): development of an instrument to evaluate oral health problems in individuals with Down syndrome. Community Dent Health. 2000;17:172–179
  26. Azoulay E, Fartoukh M, Similowski T, Galliot R, Soufir L, Le Gall JR, et al. Routine exploratory thoracentesis in ICU patients with pleural effusions: results of a French questionnaire study. J Crit Care. 2001;16:98–101
  27. Clinard F, Bardou M, Sgro C, Lefevre N, Raphael F, Paille F, et al. Non-steroidal anti-inflammatory and cytoprotective drug co-prescription in general practice (A general practitioner-based survey in France). Eur J Clin Pharmacol. 2001;57:737–743
  28. Soderlind M, Salvignol G, Izard P, Lonnqvist PA. Use of albumin, blood transfusion and intraoperative glucose by APA and ADARPEF members: a postal survey. Paediatr Anaesth. 2001;11:685–689
  29. Gerbaud L, Laurens-Belgacem B, Antoniotti S, Auquier P, Couturier , Glanddier PY. The use of exit questionnaires, a survey at 7 hospital centres. Sante Publique. 2002;14:21–30
  30. Mahe E, Lahfa M, Mansouri S, Mosharraf-Olmolk H, Rebours JL, Prud’Homme JF, et al. Physicians’ response to a letter to confirm diagnosis in a genetic study of psoriasis. Eur J Dermatol. 2002;12:66–69
  31. Ferrand E, Lemaire F, Regnier B, Kuteifan K, Badet M, Asfar P, et al. French RESSENTI Group Discrepancies between perceptions by physicians and nursing staff of intensive care unit end-of-life decisions. Am J Respir Crit Care Med. 2003;167:1310–1315
  32. Doméjean-Orliaguet S, Tubert-Jeannin S, Riordan PJ, Espelid I, Tveit AB. French dentists’ restorative treatment decisions. Oral Health Prev Dent. 2004;2:125–131
  33. Matsuda T, Marche H, Grosclaude P, Clement S. Participation behaviour of bladder cancer survivors in a medical follow-up survey on quality of life in France. Eur J Epidemiol. 2004;19:313–321
  34. Katz S. Early intervention programme for infants with Down’s syndrome. Br J Nurs. 2000;9:486–492
  35. Hartrick G. Developing health promoting practices: a transformative process. Nurs Outlook. 1998;46:219–225
  36. Hayden MF, Goldman J. Families of adults with mental retardation: stress levels and need for services. Social Work. 1996;41:657–667
  37. Kaye PL, Fiske J, Bower EJ, Newton JT, Fenlon M. Views and experiences of parents and siblings of adults with Down syndrome regarding oral healthcare: a qualitative and quantitative study. Br Dent J. 2005;198:571–578
  38. Reinhard SC, Christopher MA, Mason DJ, McConnell K, Rusca P, Toughill E. Promoting healthy communities through neighborhood nursing. Nurs Outlook. 1996;44:223–228
  39. Van Riper M, Cohen WI. Caring for children with Down syndrome and their families. J Pediatr Health Care. 2001;15:123–131

PII: S0029-6554(06)00249-1

doi: 10.1016/j.outlook.2006.09.004

Nursing Outlook
Volume 54, Issue 6 , Pages 345-352 , November 2006

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