Nursing Outlook
Volume 56, Issue 5 , Pages 216-223.e3 , September 2008

Consumer health informatics: From genomics to population health

References 

  1. Thompson TG, Brailer DJ. The Decade of Health Information Technology: Delivering Consumer-Centric and Information-Rich Health Care (A Strategic Framework). Washington DC: Office of the National Coordinator for Health Information Technology, U.S. Department of Health and Human Services; 2004;
  2. McDaniel A, Stratton R. Consumer Health Informatics: The Nature of Caring in the 21st Century. In:  Weaver C,  Delaney CW,  Weber P,  Carr R editor. Nursing and Informatics for The 21st Century: An International Look at Practice, Trends, and The Future. Chicago, IL: Healthcare Information Management and Systems Society; 2006;
  3. American Nurses Association. Code of Ethics for Nurses with Interpretive Statements. Washington, DC: ANA Publications; 2001;
  4. Eng TR, Gustafson DH. Wired for Health and Well-being: The Emergence of Interactive Health Communication. Washington, DC: Science Panel on Interactive Communication and Health, US Department of Health and Human Services; 1999;
  5. Eysenbach G, Jadad AR. Evidence-based patient choice and consumer health informatics in the Internet age. J Med Internet Res. 2001;3:e19
  6. Field MJ. Telemedicine: A Guide to Assessing Telecommunications for Health Care. Washington DC: Committee on Evaluating Clinical Applications of Telemedicine, Institute of Medicine; 1996;
  7. Telehealth-issues for nursing. ANA policy paper:10/96. Document number: 96-PRA-03. American Nurses Association, Washington DC http://www.nursingworld.org/MainMenuCategories/HealthcareandPolicyIssues/Reports/ANAPrinciples/NurseStaffing/Telehealth.aspxAccessed on December 21, 2007
  8. Eysenbach G, Sa ER, Diepgen TL. Shopping around the Internet today and tomorrow: Towards the millennium of cybermedicine. BMJ. 1999;319:1294
  9. House of Lords Select Committee on European Union Written Evidence: 29th March 2000 (Memorandum by GJW Government Relations Ltd, Health Affairs). http://www.publications.parliament.uk/pa/ld199900/ldselect/ldeucom/95/95we29.htmAccessed on January 15, 2008
  10. Eng TR. The E-health Landscape: A Terrain Map of Emerging Information and Communication Technologies in Health and Health Care. Princeton, NJ: The Robert Wood Johnson Foundation; 2001;http://www.rwjf.org/global/Accessed on January 19, 2008
  11. Eysenbach G. What is e-health?. J Med Internet Res. 2001;3:e20
  12. US General Accounting Office, Accounting and Information Management Division. Consumer Health Informatics: Emerging Issues. Gaithersburg, MD: US General Accounting Office; 1996;
  13. Bader SA, Braude RM. “Patient informatics”: Creating new partnerships in medical decision making. Acad Med. 1998;73:408–411
  14. Eysenbach G. Consumer health informatics. BMJ. 2000;320:1713–1716
  15. Houston TK, Ehrenbacher HE. The potential of consumer health informatics. Sem Onc Nursing. 2001;17:41–47
  16. Dickerson SS, Brennan PF. The Internet as a catalyst for shifting power in provider-patient relationships. Nurs Outlook. 2002;50:195–203
  17. Ferguson T, Frydman G. The first generation of e-patients. BMJ. 2004;328:1148–1149
  18. Anderson JG, Rainey MR, Eysenbach G. The impact of cyberhealthcare on the physician-patient relationship. J Med Syst. 2003;27:67–84
  19. Eysenbach G, Powell J, Kuss O, Sa ER. Empirical studies assessing the quality of health information for consumers on the World Wide Web: A systematic review. JAMA. 2002;287:2691–2700
  20. Madden M. Internet penetration and impact, 2006 (Pew Internet & American Life Project). http://www.pewinternet.org/pdfs/PIP_Internet_Impact.pdfAccessed on January 21, 2008
  21. Fox S. Online health search, 2006 (Pew Internet & American Life Project. Online Health Search 2006). http://www.pewinternet.org/PPF/r/190/report_display.aspAccessed on January 25, 2008
  22. Fox S, Rainie L. Vital decisions: How internet users decide what information to trust when they or their loved ones are sick, 2002 (Pew Internet & American Life Project). http://www.pewinternet.org/pdfs/PIP_Vital_Decisions_May2002.pdfAccessed on January 25, 2008
  23. Demographcs of Internet users. http://www.pewinternet.org/trends/User_Demo_2.15.08.htmAccessed on February 15, 2008
  24. Eysenbach G. The impact of the Internet on cancer outcomes. CA Cancer J Clin. 2003;53:356–371
  25. Horrigan JB. A typology of information and communication technology users (Pew Internet & American Life Project). http://www.pewinternet.org/pdfs/PIP_ICT_Typology.pdf2007;Accessed on January 25, 2008
  26. Fox S, Livingston G. Latinos online, 2007 (Pew Internet & American Life Project). http://www.pewinternet.org/pdfs/Latinos_Online_March_14_2007.pdfAccessed on January 25, 2008
  27. Fox S, Madden M. Generations online, 2005 (Pew Internet & American Life Project). http://www.pewinternet.org/pdfs/PIP_Generations_Memo.pdfAccessed on November 28, 2007
  28. Rideout V, Neuman T, Kitchman M, Brodie M. E-health and the Elderly: How Seniors Use the Internet for Health Information. Menlo Park, CA: The Henry J. Kaiser Family Foundation; 2005;
  29. Horrigan JB. Home broadband adoption, 2006 (Pew Internet & American Life Project). http://www.pewinternet.org/pdfs/PIP_Broadband_trends2006.pdfAccessed on August 21, 2006
  30. Kreuter MW, Wray RJ. Tailored and targeted health communication: Strategies for enhancing information relevance. Am J Health Beh. 2002;27:S227–S232
  31. Murray E, Burns J, See Tai S, Lai R, Nazareth I. Interactive health communication applications for people with chronic disease. Cochrane Database of Systematic Reviews. 2005;(Issue 4):Art. No.: CD004274. DOI: 10.1002/14651858.CD004274.pub4.
  32. Gustafson DH, Hawkins RP, Boberg EW, McTavish F, Owens B, Wise M, et al. CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. Int J Med Informatics. 2002;65:169–177
  33. Brennan PF, Moore SM, Bjornsdottir G, Jones J, Visovsky C, Rogers M. HeartCare: An Internet-based information and support system for patient home recovery after coronary artery bypass graft (CABG) surgery. J Adv Nurs. 2001;35:699–708
  34. Moen A, Brennan PF. Health@Home: The work of health information management in the household (HIMH): Implications for consumer health informatics (CHI) innovations. JAMIA. 2005;12:648–656
  35. The personal health working group final report (Connecting for health: A public-private collaborative). http://www.connectingforhealth.org/resources/final_phwg_report1.pdfAccessed on July 11, 2008
  36. Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: Definitions, benefits, and strategies for overcoming barriers to adoption. JAMIA. 2006;13:121–126
  37. Project health design overview. http://www.projecthealthdesign.org/about/overviewAccessed on February 15, 2008
  38. Connecting for Health (Who we are). http://www.connectingforhealth.org/aboutus/index.htmlAccessed on February 15, 2008
  39. The common framework for networked personal health information: Overview and principles. http://www.connectingforhealth.org/commonframework/docs/Overview.pdfAccessed on July 11, 2008
  40. Hurling R, Catt M, Boni MD, Fairley BW, Hurst T, Murray P, et al. Using Internet and mobile phone technology to deliver an automated physical activity program: Randomized controlled trial. J Med Internet Res. 2007;9:e7
  41. Brennan PF. The ComputerLink projects: A decade of experience. Stud Health Technol Inform. 1997;46:521–526
  42. Klemm P, Bunnell D, Cullen M, Soneji R, Gibbons P, Holecek A. Online cancer support groups: A review of the research literature. Comput Inform Nurs. 2003;21:136–142
  43. Lenhart A, Madden M, Macgill AR, Smith A. Teens and social media (Pew Internet & American Life Project, 2007). http://www.pewinternet.org/pdfs/PIP_Teens_Social_Media_Final.pdfAccessed on Feb 15, 2008
  44. Senathirajah Y, Kukafka R, Guptarak M, Cohall A, Senathirajah Y, Kukafka R, et al. Health information seeking and technology use in Harlem—a pilot study using community-based participatory research. Proc Am Informatics Assoc Symp. 2006;704–708
  45. Herrick JB. Peculiar elongated and sickle-shaped red blood corpuscles in a case of severe anemia. Arch Internal Med. 1910;6:517–521
  46. Ingram VM. Specific chemical difference between the globins of normal human and sickle-cell anemia haemoglobin. Nature. 1956;178:792–794
  47. Online Mendelian Inheritance in Man, OMIM.™ McKusick-Nathans Institute of Genetic Medicine, Johns Hopkins University (Baltimore, MD) and National Center for Biotechnology Information, National Library of Medicine (Bethesda, MD). http://www.ncbi.nlm.nih.gov/omimAccessed on Feb 12, 2008
  48. Pericak-Vance MA, Bebout JL, Gaskell PC, Yamaoka LH, Hung WY, Alberts MJ, et al. Linkage studies in familial Alzheimer disease: Evidence for chromosome 19 linkage. Am J Human Genetics. 1991;48:1034–1050
  49. Hernandez M, Blazer DG. Genes, behavior, and the Social Environment: Moving Beyond the Nature/Nurture Debate. Washington, DC: Institute of Medicine Committee on Assessing Interactions Among Social, Behavioral, and Genetic Factors in Health; 2006;
  50. Halsey LD, Williams JK, Cooksey JA, Flanagan PA, Forte G, Blizer MGUS. genetics nurses in advanced practice. J Nurs Sch. 2006;38:213–218
  51. American Nurses Association. Genetics/Genomics Nursing Scope and Standards of Practice. Washington DC: ANA Publications; 2007;
  52. Conley Y, Tinkle MB. The future of genomic nursing research. J Nurs Sch. 2007;39:17–24
  53. Loescher LJ, Merkle CJ. The interface of genomic technologies and nursing. J Nurs Sch. 2005;37:111–119
  54. Schutte DL, Maas M, Buckwalter KC. A LRPAP1 intronic insertion/deletion polymorphism and phenotypic variability in Alzheimer Disease. Res Theory Nurs Pract. 2003;17:301–319
  55. Kleiber C, Schutte DL, McCarthy AM, Floria-Santos M, Murray C, Hanrahan K. Predictors of topical analgesic effectiveness in children. J Pain. 2007;8:168–174
  56. Mailman MD, Feolo M, Jin Y, Kimura M, Tryka K, Bagoutdinov R, et al. The NCBI dbGaP database of genotypes and phenotypes. Nat Genet. 2007;39:1181–1186
  57. Wong MY, Day NE, Luan JA, Chan KP, Wareham NJ. The detection of gene-environment interaction for continuous traits: Should we deal with measurement error by bigger studies or better measurement?. Int J Epid. 2003;32:51–57
  58. Baudhuin LM, Langamn LJ, O'Kane DJ. Translation of pharmacogenetics into clinically relevant testing modalities. Clinical pharmacology & therapeutics. 2007;82:373–377
  59. Hoffman MA. The genome-enabled electronic medical record. J Biomed Inform. 2007;40:44–46
  60. Pagon RA, Tarczy-Hornoch P, Baskin PK, Edward JE, Covington ML, Espeseth M, et al. GeneTests-GeneClinics: Genetic testing information for a growing audience. Hum Mutat. 2002;19:501–509
  61. Kindig D, Stoddart G. What is population health?. Am J Pub Health. 2003;93:380–383
  62. Public Health Agency of Canada. What is population health?. http://www.phac-aspc.gc.ca/ph-sp/phdd/approach/index.htmlAccessed on April 26, 2008
  63. Turnock B. Public health: What it is and how it works. (3rd ed). Sudbury, MA: Jones and Bartlett; 2004;
  64. Committee for the Study of the Future of Public Health. The Future of Public Health. Washington, D.C: Institute of Medicine Division of Health Care Services; 1988;
  65. Association of State and Territorial Health Officials. Public health informatics policy. Ratified 09-29-04. 07-06 http://www.astho.org/pubs/InformaticsWorkforceIssueReport.pdfAccessed on January 25, 2008
  66. Protecting communities through improved public health information system (The Minnesota Public Health Information Network Report to the Minnesota Legislature). http://www.health.state.mn.us/e-health/mnphin/legrpt2007.pdfAccessed on July 11, 2008
  67. Public health nursing practice for the 21st century: National Satellite Learning Conference Learning Guide (Minnesota Department Health). http://www.health.state.mn.us/divs/cfh/ophp/resources/docs/21stcentury-satellite-learning-guide.pdfAccessed on July 11, 2008
  68. Center for Disease Control: National electronic disease surveillance system. www.cdc.gov/nedss/Accessed on January 25, 2008
  69. Centers for Disease Control. IIS home page http://www.cdc.gov/vaccines/programs/iis/default.htmAccessed on January 25, 2008
  70. Peterson CA. Be safe, be prepared: Emergency system for advanced registration of volunteer health professional in disaster response. OJIN. 2006;11(3):http://www.nursingworld.org/MainMenuCategories/ANAMarketplace/ANAPeriodicals/OJIN/TableofContents/Volume112006/Number3/tpc31_216083.aspxAccessed on July 11, 2008
  71. Minnesota Department of Health. Health alert network. http://www.health.state.mn.us/han/healthalertfs.pdfAccessed on February 16
  72. Minnesota Department of Health. MNTrac overview. www.health.state.mn.us/oep/responsesystems/mntrac.htmlAccessed on January 24
  73. CSC: client results (Centers for Disease Control and Prevention (U.S.): National electronic disease surveillance system gives U.S. an edge on bioterrorism). www.csc.com/industries/government/casestudies/1236.shtmlAccessed on January 25, 2008
  74. Center for Disease Control: Public health information network. http://www.cdc.gov/phin/about.htmlAccessed on January 25, 2008
  75. Public Health Informatics Institute. Public health opportunities in health information exchange, 2005. http://www.phii.org/resources/doc/Opportunities_0605.pdf#search=%22health%20information%20exchange%22Accessed on January 24, 2008

PII: S0029-6554(08)00157-7

doi: 10.1016/j.outlook.2008.06.006

Nursing Outlook
Volume 56, Issue 5 , Pages 216-223.e3 , September 2008

Article Tools

* Image Usage & Resolution