The letter from Secretary Shalala appointing me to the Secretary's Advisory Committee
on Genetic Testing (SACGT) was dated April 12, 1999. The date would have been my sister's
50th birthday, except my sister had died of cystic fibrosis shortly before her sixth
birthday. A brother, who had been born a year before me, had died at age 2 weeks,
and it was only after my sister's diagnosis that we learned his meconium ileus also
had been due to cystic fibrosis. Clearly, genetic illness has had a large impact on
my family. My father was an early leader in the National Cystic Fibrosis Association:
he founded chapters in 5 of the 6 New England States, was the first president of the
Massachusetts chapter, and was a member of the original Board of Directors of the
National Association.
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Copyright
© 2000 Mosby, Inc. Published by Elsevier Inc. All rights reserved.
