Advertisement

Policy brief: The Institute of Medicine report Dying in America: Improving quality and honoring individual preferences near the end of life

  • Salimah H. Meghani
    Correspondence
    Corresponding author: Salimah H. Meghani, Department of Biobehavioral Health Sciences, University of Pennsylvania School of Nursing, NewCourtland Center for Transitions and Health, Claire M. Fagin Hall, 418 Curie Boulevard, Room 337, Philadelphia, PA 19104-4217.
    Affiliations
    Department of Biobehavioral Health Sciences, NewCourtland Center for Transitions and Health, University of Pennsylvania School of Nursing, Philadelphia, PA
    Search for articles by this author
  • Pamela S. Hinds
    Affiliations
    Department of Nursing Research and Quality Outcomes, Center for Translational Science, Children's National Health System, The George Washington University, Washington, DC
    Search for articles by this author
Published:December 11, 2014DOI:https://doi.org/10.1016/j.outlook.2014.11.007

      Abstract

      The Institute of Medicine's 2014 report Dying in America: Improving quality and honoring individual preferences near the end of life provides recommendations for creating transformational change in the models of end-of-life care delivery, clinician–patient communication, and advance care planning; improving professional education, reforming policies, and payment systems; and engaging and educating the public toward high-quality, coordinated, and comprehensive care that is person centered and family oriented. This article provides a policy brief of this recently released report. The role of nursing in advancing these recommendations is discussed.

      Keywords

      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'

      Subscribe:

      Subscribe to Nursing Outlook
      Already a print subscriber? Claim online access
      Already an online subscriber? Sign in
      Institutional Access: Sign in to ScienceDirect

      References

        • American Board of Internal Medicine
        Medical oncology: Certification examination blueprint.
        2013 (Retrieved from)
        • California HealthCare Foundation
        Final chapter: Californians' attitudes and experiences with death and dying.
        2012 (Retrieved from)
        • Center to Advance Palliative Care
        2011 public opinion research on palliative care.
        2011 (Retrieved from)
        • Casarett D.
        • Pickard A.
        • Bailey F.A.
        • Ritchie C.
        • Furman C.
        • Rosenfeld K.
        • Shea J.A.
        • et al.
        Do palliative consultations improve patient outcomes?.
        Journal of the American Geriatrics Society. 2008; 56: 593-599
        • Dickinson G.E.
        Thirty-five years of end-of-life issues in US medical schools.
        American Journal of Hospice & Palliative Care. 2011; 28: 412-417
        • Dickinson G.E.
        End-of-life and palliative care issues in medical and nursing schools in the United States.
        Death Studies. 2007; 31: 713-726
        • Ditto P.H.
        • Jacobson J.A.
        • Smucker W.D.
        • Danks J.H.
        • Fagerlin A.
        Context changes choices: a prospective study of the effects of hospitalization on life-sustaining treatment preferences.
        Medical Decision Making. 2006; 26: 313-322
        • End-of-Life Nursing Education Consortium
        Fact sheet: End-of-life nursing education consortium.
        AACN, Washington, D.C2013
        • EPEC
        Education in palliative and end-of-life care.
        (Chicago, IL)2013
        • Family Caregiver Alliance
        Fact sheet: Selected caregiver statistics.
        2012 (Retrieved from)
        • Fried T.R.
        • O'Leary J.R.
        Using the experiences of bereaved caregivers to inform patient- and caregiver-centered advance care planning.
        Journal of General Internal Medicine. 2008; 23: 1602-1607
        • Gomes B.
        • Calanzani N.
        • Curiale V.
        • McCrone P.
        • Higginson I.J.
        Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers.
        Cochrane Database of Systematic Review. 2013; : CD007760
        • Greer J.A.
        • Pirl W.F.
        • Jackson V.A.
        • Muzikansky A.
        • Lennes I.T.
        • Heist R.S.
        • Temel J.S.
        • et al.
        Effect of early palliative care on chemotherapy use and end-of-life care in patients with metastatic non-small-cell lung cancer.
        Journal of Clinical Oncology. 2012; 30: 394-400
        • Hammes B.J.
        • Rooney B.L.
        • Gundrum J.D.
        A comparative, retrospective, observational study of the prevalence, availability, and specificity of advance care plans in a county that implemented an advance care planning microsystem.
        Journal of the American Geriatrics Society. 2010; 58: 1249-1255
        • Hickman S.E.
        • Nelson C.A.
        • Moss A.H.
        • Tolle S.W.
        • Perrin N.A.
        • Hammes B.J.
        The consistency between treatments provided to nursing facility residents and orders on the physician orders for life-sustaining treatment form.
        Journal of the American Geriatrics Society. 2011; 59: 2091-2099
        • Hobbs F.
        • Stoops N.
        Demographic trends in the 20th century: Census 2000 special reports.
        2002 (Retrieved from)
        • Institute of Medicine (IOM)
        Dying in America: Improving quality and honoring individual preferences near the end of life.
        The National Academies Press, Washington, D.C2014
        • Institute of Medicine (IOM)
        Key findings and recommendations: Dying in America: Improving quality and honoring individual preferences near the end of life.
        The National Academies Press, Washington, D.C.2014
        • Institute of Medicine (IOM)
        When children die: Improving palliative and end-of-life care for children and their families.
        National Academies Press, Washington, D.C2003
        • Institute of Medicine (IOM)
        Approaching death: Improving care at the end of life.
        National Academy Press, Washington, D.C1997
        • Kim S.Y.
        • Karlawish J.H.
        • Caine E.D.
        Current state of research on decision-making competence of cognitively impaired elderly persons.
        The American Journal of Geriatric Psychiatry. 2002; 10: 151-165
        • Lupu D.
        • American Academy of Hospice and Palliative Medicine Workforce Task Force
        Estimate of current hospice and palliative medicine physician workforce shortage.
        Journal of Pain and Symptom Management. 2010; 40: 899-911
        • National Hospice and Palliative Care Organization
        NHPCO facts and figures: Hospice care in America.
        2014 (Retrieved from)
        • National Hospice and Palliative Care Organization
        NHPCO facts and figures: Hospice care in America.
        2012 (Retrieved from)
        • National Board for Certification of Hospice and Palliative Nurses
        Candidate handbook advanced certified hospice and palliative nurse (ACHPN®).
        2014 (Retrieved from)
        • Pew Research Center
        Views on end-of-life medical treatments.
        2013 (Retrieved from)
        • Rabow M.
        • Kvale E.
        • Barbour L.
        • Cassel J.B.
        • Cohen S.
        • Jackson V.
        • Weissman D.
        • et al.
        Moving upstream: A review of the evidence of the impact of outpatient palliative care.
        Journal of Palliative Medicine. 2013; 16: 1540-1549
        • Reinhard S.C.
        • Levine C.
        • Samis S.
        Home alone: Family caregivers providing complex chronic care.
        2012 (Retrieved from)
        • Silveira M.J.
        • Kim S.Y.
        • Langa K.M.
        Advance directives and outcomes of surrogate decision making before death.
        New England Journal of Medicine. 2010; 362: 1211-1218
        • Temel J.S.
        • Greer J.A.
        • Muzikansky A.
        • Gallagher E.R.
        • Admane S.
        • Jackson V.A.
        • Lynch T.J.
        • et al.
        Early palliative care for patients with metastatic non-small-cell lung cancer.
        New England Journal of Medicine. 2010; 363: 733-742
        • Teno J.M.
        • Gozalo P.L.
        • Bynum J.P.
        • Leland N.E.
        • Miller S.C.
        • Morden N.E.
        • Mor V.
        • et al.
        Change in end-of-life care for Medicare beneficiaries: Site of death, place of care, and health care transitions in 2000, 2005, and 2009.
        Journal of the American Medical Association. 2013; 309: 470-477
        • The Regence Foundation
        Living Well at the End of Life: Research findings from 2011 public opinion research.
        2011 (Retrieved from)
        • U.S. Census Bureau
        Annual estimates of the resident population for selected age groups by sex for the United States, States, Counties, and Puerto Rico Commonwealth and Municiios: April 1, 2010 to July 1, 2012.
        2013 (Retrieved from)
        • Vig E.K.
        • Starks H.
        • Taylor J.S.
        • Hopley E.K.
        • Fryer-Edwards K.
        Surviving surrogate decision-making: What helps and hampers the experience of making medical decisions for others.
        Journal of General Internal Medicine. 2007; 22: 1274-1279