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Research Article
Political action: Genetic testing appointment
Nursing Outlook
Vol. 48Issue 6p316–317Published in issue: November, 2000
- Judith A. Lewis
Cited in Scopus: 0
The letter from Secretary Shalala appointing me to the Secretary's Advisory Committee on Genetic Testing (SACGT) was dated April 12, 1999. The date would have been my sister's 50th birthday, except my sister had died of cystic fibrosis shortly before her sixth birthday. A brother, who had been born a year before me, had died at age 2 weeks, and it was only after my sister's diagnosis that we learned his meconium ileus also had been due to cystic fibrosis. Clearly, genetic illness has had a large impact on my family.